Building Community Through Connection In The Rare Disease Community

Building Community Through Connection in the Rare Disease Community

This Is Alabama

Building a Community Engagement Model for Rare Disease: A Community Ambassador Approach

Rare Diseases Clinical Research Network (RDCRN)

Building a Patient-Driven Movement: The rare disease community bands together for a fighting chance

Learn About the Rare Disease Community: Meet Mara Gervais

Creating Community in Rare Disease

Connecting Rare Disease Patient Communities and Advocacy Groups

Learn About the Rare Disease Community: Meet Leigh-Ana Rossitto

Valley family creating sense of community for those fighting rare disorders

Learn About the Rare Disease Community: Meet Deena Chisholm

Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement

Learn About the Rare Disease Community: Meet Mary McGowan

Take the Leap! Forming a 501(c)(3) & Establishing a Disease Registry to Advance Your Rare Community

National Organization for Rare Disorders (NORD)

Raremark | Rare disease community

Raremark Health

Learn About the Rare Disease Community: Meet Luisa Leal

Collaborating to support the Rare Disease Community on Rare Disease Day

FRAXA Research Foundation

Episode 6: Connecting with the Rare Disease Community (Shprintzen-Goldberg Syndrome)

Remarkable Rare: Living with SGS

Learn About the Rare Disease Community: Meet Sarita Edwards

Creating the Rare Disease Movement: The Power of the Patient Community

Learn About the Rare Disease Community: Meet Dr. Dr. Harsha Rajasimha

Keeping Community Engagement Central to Rare Disease Research